Meeting Update


We have a support group for moms in the Tulsa area!

Our group meets the first Thursday of every month from 7-9p.
We welcome all moms who are parenting children who have Asperger's Syndrome.
For locations and last minute updates about meetings, check here or (even better) check our Facebook page.
We are currently meeting in the back room at Mazzio's on 51st & Sheridan in Tulsa.

Wednesday, August 31, 2016

Purpose...Saddle Up!

Hey all you awesome Mom's out there!

I am so happy that we are meeting this week!  I have missed our group!

A couple reminders that your kids have a purpose, and it's up to you to help decipher it!
1) Are you feeling energized and joyous about a new year?  If so awesome!  If you are feeling anxious, nervous, edgy, cranky and eating comfort food - or not eating at all....well, that's normal for this time of year!  That's also what I have heard multiple times this past week from other Mom's.  Guess what?  YOU ARE AMAZING!  You are the engine that runs your kids care!  You are the master juggler of multiple, multi-tasking, uber tasking!  So, take a deep breath, look in the mirror and tell yourself that you are wonderful! 
No one knows your kid like you do.
That's it.  
We must be wise, to accept wise council, yes, but we must also trust your "gut" feel on certain things.  Sometimes no matter how much we might hear "this really is the best: situation, placement, process, etc. etc....sometimes, if we know down to our toes that it really is NOT the best (fill in the blank)...well then, we stand up and say (very politely, but firmly),  let's figure out another option, just to try, we need another option; and then work with whomever, to figure out another try!  There always is another option.  I met a new friend today who was another awesome Mom.  We were recounting many of the therapies we had tried over the years (both our kids are teens), and that was a great reminder that there is always another thing to try, and we know our kids!  So - get out there and be your kids advocate - ok?  Remember, they were created for a purpose, and due to the unique brain that they have, they will just need more assistance in finding that purpose and we are the "more assistance"!

For you created my inmost being; you knit me together in my mother’s womb.
14 I praise you because I am fearfully and wonderfully made;your works are wonderful,
    I know that full well.
                                               Psalm 139:13-14

2)Speaking of purpose:  I am sharing what I put on the website a couple weeks ago.  We have great stuff happening regarding beginning the college programs in Oklahoma for our kids and other kids that need supports to be successful.  So, we need to get the word OUT!  Here you go!

We have been a little quiet lately, but that is going to change!

Lead Learn Live is sharing some exciting news!  
After over 3 years as a grass roots effort, and with the understanding it is up to US as parents, family members, professionals, educators, and supporters from every area in Oklahoma to get these programs into our state...we are happy to announce that we are now a fully functioning 501(c)(3) corporation!

As such, we have turned our full attention to approaching foundations to raise the seed funding necessary to get a program or program(s)!, into Oklahoma.  We are also getting ready to have a grass roots call to action to support these programs from those that want it for our kids! Foundations need to know there is support from the "base".  Meaning we as parents and supporters of all kinds need to invest in the effort so foundations can see that we are serious about these programs in Oklahoma!

So please stay tuned, urge your family, friends, etc to sign up on the website, like us on Facebook, and check out the website with the new Board of Directors and Advisory Board information!
There was a terrific song years ago that had a wonderful lyric, very appropriate for us now!:    "Saddle up your horses, we have a trail to blaze!"
                                    Thank you Steven Curtis Chapman for that line!

Blessings and see you Thursday!

Monday, August 8, 2016

Back to School Autism Spectrum 101

We love it so much for the continuing summer.
We don't love it so much, because it's back to school.
So what is our job as parents at this time of year?  Here are some thoughts for you!
Are your kids starting to act much more....well "spectrum-ish" right now?  That is normal and even with a now graduated kiddo, we still see that somewhat.  Our's may now tell us very clearly he had a nightmare that he was in school and all the teachers hated him :), rather than "act out", but that was a great reminder that the big transition that takes place for our kids to go back to this different schedule, still has an impact, no matter the age.
So since we didn't meet this month, and won't start back until next month.  Here's some reminders that you might think about as we go into "school mode" once again!
1)  Get your kiddo back into some sort of a schedule that sneakily makes them get acclimated to routine again.  This is for homeschoolers too!
2)  Whether they want to talk about it or not, start talking about school in the most positive terms in small "bites".
3)  Get to the school and walk them to their class (classes) while no one is there, every day, if the anxiety is high.  If you do this every day, particularly in the morning, chances are you will also meet the teacher setting up their classroom.  A very good thing.  Start doing a couple of fun worksheets at the times you will do your homeschooling...same concept!
4)  Carry your handy dandy "one sheet summary" about your kiddo with you and if you happen to run into the teacher, you can "just happen to have this with you".  Give it to them telling them what it is - NOT going over it - just telling them what it is and letting them have it.  If you homeschool, make your one sheet summary for you - so on the rough days, you will remember strengths and weaknesses when you will be too close to see it!
5) What is the one sheet summary?  It is a concise, easy to read version of who your kiddo is, at a glance.  It should contain:  Strengths (academics and personal), Challenges (academics and social) (never WEAKNESSES), "Stuff that helps" - which is a very short format for key accommodations that help with those challenges that you listed.  Make it graphic and easy to read with the headings easy to pick out.  It's basically an IEP in easy to read form that hits the high points in a positive way for the teacher that is weary of plowing through 10-15 page IEP's.
6)  Be extra patient, extra gentle but still firm about the need for school and telling your kiddos they are amazing and there are so many amazing things to learn!!

And always - your kids were created for a purpose and our job is to help them find that purpose, so saddle up!  Make it a year of promise!!

Proverbs 4:13  “Hold on to instruction, do not let it go; guard it well, for it is your life.”

Blessings and see you in September!